Musings of a Marfan Mom

A Marfan Themed Birthday Party

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Yes, you read that right. J turned 9 recently, and decided he wanted a Marfan-themed birthday party. That might sound a little…morbid? to you, but it fits our sense of humor. Marfan isn’t going away, so we might as well have some fun with it and educate!

I’m pretty proud of how this turned out! I just wish I’d gotten pictures of all of it. We had the party at the local fitness center pool. All the food but the pizza corresponded with body parts that are affected by Marfan.

I found this great Doctor Party pack for dishes. We used grapes for eyes.
The bones are made of pretzels and mini marshmallows, dipped in white chocolate.
Easiest blood ever!
I’m proud of this cake! It’s a two layer white cake with cranberry filling and topping. I used a dairy-free cream cheese icing.
Hard to see, but we had Mandarin orange pieces to represent lungs, and cranberry salad for connective tissue.
Not the greatest photo, but the goodie bags had pens that look like syringes, and pens that are shaped like bones!
This photo booth frame is actually left over from our local Walk for Victory a couple years ago. I’d forgotten we still had it, but it was perfect for the kids to take silly pictures with!
For our craft, the kids decorated “Marf Men” (gingerbread men), an idea by my friend Ashley. Here’s R with one of hers!
We have the coolest indoor pool! J loves that this is a physical activity where he can be equal to his peers. It’s why he picks here for his party each year.
Miss E and I hung out poolside. She is getting so big!
He was SO happy!

Have you ever done a Marfan-themed birthday? Would you?

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