March 7, 2014
It’s Friday, which means it’s Friday Favorites time! Come on over and link up a favorite post that you wrote this week! Amy and/or I will come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too.
March 6, 2014
Thanks to some Marfan (and Loeys-Dietz) moms, J and I have recently become a part of the super cool organization “I Run 4.” IR4 pairs runners with children and adults with special needs. The person with special needs is the coach and the runner dedicates all of their runs to their buddy.
J was paired with a college student on the other side of the country. We chatted a bit over Facebook chat, and when she runs, she posts the the IR4 page and tags me. In return, J and I leave encouraging pictures or messages for her there just as often.
Last week J’s buddy announced her entire sorority would be “playing for J” in their club soccer games! How cool is that? So, J and I made a big poster to cheer them on and posted it to the IR4 page before their game. The girls won 9-0! We’ll make something else for next week.
If you think you or your child would be interested in IR4, definitely sign up! We waited less than 24 hours for a match. The waiting list for runners is over 3 months long!
You can learn more about IR4 at whoirun4.com. Directions for getting matched are here.
March 5, 2014
Kind of an unusual request here, but a fellow Marfan Mom (and a good friend of mine), Steph, is looking for a GREEN Carters Knot Blanket. Her son, Logan, uses his as a comfort item, particularly for his heart surgeries. He’s had 2 so far, with more surgeries on the horizon. Problem is, his blanket is on its last threads, and Carters doesn’t make this blanket any more.
She’s searched Amazon, Ebay, and local consignment shops. They only have the blue version, and Logan is uninterested in that one.
If you happen to have a green version of this blanket that is no longer being used, Steph would love to buy it from you!