Musings of a Marfan Mom

Diagnosis Stories

Here is a collection of personal stories submitted by readers. If you would like to share your story (Marfan or any related disorder), just email it to marfmom@gmail.com. I’d prefer if you included a picture, but it’s not mandatory. Submissions may be edited for grammar and clarity.

Ben
Debbie & Lee
Erin
Jennifer, Aaron, & Joshua
Jess & Brody
Josh
Kaitlyn
Nicole and Hanna
Rachel, Tony, & Sam
Rachel (LDS)
Rhiannen (EDS)
Sarah & Danny
Stephanie & Logan
Tara-Lee & Alexa
Vittoria

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