Musings of a Marfan Mom

March 12, 2013
by marfmom
3 Comments

The Menininho Turns 4

I love traditions and decided last year that a fun birthday tradition would be to ask them the same set of questions about their lives, to see how their answers changed over time. Here is the Menininho’s “favorites list” at age 4. All responses are verbatim.

Favorite food: Cheerios and milk and oatmeal (can you tell I asked him during breakfast?)
Favorite dinner: Pasta
Favorite fruit: Um, watermelon
Favorite TV show: All the shows, on the PBS kids shows. PBS Kids is on WVIZ.
Favorite song: The February Song (My Heavenly Father Loves Me)
Favorite book: SUPERHEROES (yes, he yelled it, and no, it’s not a book)
Favorite toy: My computer because I really gotta exit a problem. The problem #1 is you took away my computer yesterday. That’s problem #1.
Favorite singer: Daddy and you.
Favorite stuffed animal: Um, I guess Polar Bear
Favorite animal: Lions
Favorite place to go: Dairy Queen (he’s only been here 3 times)
Best friend: Olivia
Things I like to do for fun: Play tag.

child smiling

March 10, 2013
by marfmom
0 comments

An Unexpected Presentation

I’ve got lots of posts I can’t wait to share with you, about our birthday-slash-i-need-a-break-from-dealing-with-insurance-companies weekend trip to Niagara Falls, the feeding regime we’ve set up, and how J’s official apraxia evaluation went. But (you knew there’d be a ‘but’) I just got asked to give a Grand Rounds presentation 2 weeks from now. That is an hour-long presentation to a group of medical professionals, by another professional. In this instance, I’ll be presenting on pediatric issues in Marfan syndrome & Loeys-Dietz syndrome to a group of pediatricians, speech therapists, occupational therapists, and nutritionists. Last time I did this (as the final project for my Masters degree) I had a few months to prepare; this time I need to have stuff done by the end of this week for everyone who needs to, to review it. I’ve got some posts already scheduled, but the next couple of weeks will be light. Please bear with me! 🙂

woman at Niagara Falls