Musings of a Marfan Mom

December 17, 2013
by marfmom
1 Comment

Spreading Some Holiday Cheer for Boston Children’s Hospital

Hello everyone! I’m hoping you might be able to help a fellow Marf Mom with a service project. My friend Stephanie’s son Logan is a patient at Boston Children’s Hospital (BCH). It’s the number one pediatric heart center in the US, and home to a great Marfan & related disorders clinic. If you haven’t read Stephanie’s guest post about how the team there saved Logan’s life, it’s a must read.

Stephanie is collecting gift cards (even partially used ones!) for BCH. While children recover in the hospital, social workers pass along gift cards to parents to make their stay a little easier. Stephanie told me about the importance of a $5 Starbucks card she was given one day, just the nudge she needed to take a few minutes for herself to recharge.

If you have some gift cards (any kind….restaurants, amazon, itunes, gasoline, etc.) you’re not using or you want to pick up one to donate, let me know and I’ll get you in contact with Stephanie. And if you’d rather donate directly, instead of sending to Stephanie, I can give you instructions on that too.

Thank you, and Happy Holidays! 🙂

December 13, 2013
by marfmom
0 comments

Friday Favorites

It’s Friday, which means it’s Friday Favorites time! Come on over and link up a favorite post that you wrote this week! Amy and/or I will come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too.


Friday Favorites with Musings of a Marfan Mom & Anktangle

December 10, 2013
by marfmom
2 Comments

It’s Beginning to Look a Lot Like Christmas

Christmas is my favorite holiday! I love the MAGIC of it all! We do Santa here, and a version of Elf on the Shelf. I get more excited to track Santa on the NORAD tracker than the kids, I swear. I love the decorations, the smells, the shopping, the wrapping, and the feelings of love and good will everywhere. We don’t go over the top with presents…our focus is on making fun memories and traditions with our kids.

One tradition I started this year with M is a paper chain advent calendar. Instead of chocolates, each paper chain is a service project for him (us) to do. He came up with many of the service projects. Some are simple, like picking up his toys without being asked, drawing a picture for his aunts or uncles, or giving someone a hug. Others take some more planning. We’ve gotten a little behind, so yesterday we accomplished 3.

In the absence of chefs hats, Miles picked out these!

In the absence of chefs hats, M picked out these!


After breakfast, M, J, and I went to the library to drop off some new toys for Toys for Tots. Then, we got to baking. First we baked cookies for our town’s firemen. M drew a couple of pictures of a “fireman fighting fire” and “a fireman and firewoman saving the world” to include with the cookies. Then, we made cupcakes for all of our neighbors. Those we delivered after Mark got home, and it was so fun! We got to catch up with a neighbor we haven’t seen in awhile, and meet some neighbors a few houses down that we hadn’t chatted with before. We’ll have to bake for the neighbors more often! 🙂
cupcakes
What are some things you’re doing to get ready for the holidays?