Musings of a Marfan Mom

July 2, 2009
by marfmom
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Teen Activist

A few entries back I mentioned that one of the people I’ll be on the NMF Conference panel with is a teen named Laurel. Really, she’s fabulous and I am so proud of her for all that she’s accomplished. She was recently featured on www.myneworleans.com as a community leader and so I want to brag. You can read about her HERE.

June 28, 2009
by marfmom
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Church BBQ

Our congregation had a family BBQ yesterday at our church’s softball field (Yes, our church has a softball field. Apparently a former church leader wanted to turn some extra church land into a softball field and the church finally agreed, if he’d pay the $90,000 to clean up the land and construct the field, and he did. Now, no one plays on it.). It was about 100 degrees out, maybe a little cooler. We slathered Menininho in sunscreen and his new hat so that he’d be OK in the heat. I had made strawberry jello (I caved in to the church lady stereotype!) with pieces of strawberry and marshmallows in it. It’s really quite good….when it gels. However, despite 6 1/2 hours in the fridge yesterday I had a soupy mess on my hands and we all had to drink the jello out of dixie cups. Darn 🙁

After about a half hour in the sun (well, technically under the massive tent thing that the Rickers brought), it was decided we should pack it inside and play volleyball instead. Since the Rickers stole Menininho for the duration of the event, I got to take lots of pictures!