Musings of a Marfan Mom

August 2, 2009
by marfmom
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Of "Fun" Flights and Other Things

I have been terrible about keeping up on my posts recently. I blame it on conference! I finally have my speech written though, and I think everything is ready to go for the teen program so I can almost sit back and relax (I will after I finish some fundraising stuff for our local chapter, later this afternoon).

Right now I’m blogging live from Madison, WI. I think it looks a lot like Ohio, except that everyone here exercises and spends lots of time outdoors. I don’t think I was ever so glad to be off an airplane as I was yesterday! Mark found that if I flew out of and into non-local airports we could save some money and also get me a non-stop flight. This seemed like a great idea, since although this was going to be Menininho’s 4th flight, it was my first time traveling alone with him.

We made it through the airport easily (thanks to Mark helping me with the luggage) and quickly. TSA sure doesn’t make it easy to get an infant through security alone (dismantling the stroller/carseat contraption is tricky one handed; teething babies can and will eat your boarding pass!), but there was a very nice lady behind me who helped me, and a great TSA agent who made sure the stroller was OK. Thank you, thank you!!! They made my morning a lot easier 🙂

Now, I’d read a lot of articles, recent articles, about traveling with ‘infants in lap” and they all suggest asking the airline agent if there are spare seats so that the child’s car seat can be brought along. I have, in fact, asked this before on other flights and had there ever been empty seats, we would have been accommodated. So, I waited patiently at the desk for the gate agent to arrived, asked her how she was doing, explained my situation, and asked if there were any empty seats. Our conversation went as follows:

Agent: Oh sure, we have quite a few empty seats on this flight. Let me see your ticket. Oh! Well, you’ve been assigned to the row before the exit row, so we have to move you. [Apparently babies aren’t allowed to be within a row of an exit row…who knew?]
Me: Well, great! Could you just switch me to a row with an already empty seat then, so I can bring the car seat?
Agent: No. The stewardesses won’t like it if they see that.
Me: Huh? I don’t understand. There are empty seats on the plane. I already have to move. People bring car seats on the plane all the time. Please, I’d really appreciate it if you could allow me to move to a row that already has an empty seat.
Agent: You should have thought about that before. You should have bought a ticket for the baby. There are lots of empty seats, but I’m not going to let you use one. Lap babies should have to stay on your lap.

CLEARLY this woman has never traveled alone with a teething 6 month old.

So, not only was I not allowed to bring the car seat on board or even just swap to a row with an already empty seat, I was put in the MIDDLE seat of two random MEN. I asked if I could at least have an aisle seat because I was going to be getting up frequently and also I have crazy long legs, but apparently seats were assigned ahead of time (I blame this on Orbtiz, which Mark said did not allow him to select a seat), and middle seats were the only ones left.

I really wish the agent had been made to sit next to me. I felt really bad for the two guys. I could tell the older man was put off by me breast feeding (I was wearing my snazzy cover, so it’s not like he could see anything) but Menininho had to eat, and I had to change his diaper twice during the flight. I needed to walk around more than that, but the man made SUCH a production out of letting me out to change the diaper that I didn’t dare trying walking Menininho around the plane. [This might be unpopular, but I’m going to say it. I feel like aisle seats should go first to those with kids, the pregnant, those with medical issues, and the really long-legged. Short, healthy, single people shouldn’t use them up!]

Anyhow, Menininho cried for at least half of the 4 hour flight. I tried everything to make him feel better, but he had a hard time going to sleep, even in his sling. I felt bad for him too 🙁 I was really grateful to the man on the other side of me though. He was closer to my age and told me he had a 9 month old daughter at home. He entertained Menininho with funny faces for a little bit and even let him pull on his jersey.

Mom flew into the same airport at the same time, coming from helping Matt get settled in New Orleans, so she was able to meet Menininho and me at the gate. We are SOOOOO happy to be visiting her and Gabriella!

Tomorrow’s mission: Buy a new nursing bra. This is going to border on TMI, but I wish someone had told me. Do NOT buy a “low cut” nursing bra, no matter how cute it may make look at the store. Also, do not fly when wearing a new bra for the first time, before you’ve had a chance to try it out. When you’re wearing that low cut bra and it’s feeding time, all of a sudden you won’t be in that bra anymore if you know what I mean, and it’s reeeeaaally awkward.

In the next few days: Post about playgroup and the last in the My Life With Marfan series

July 27, 2009
by marfmom
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Scott and Kevin Visit Part 2

On Monday we drove down to Monterey Bay for lunch. We’d been disappointed not to have been able to take the boys to Bubba Gump’s for lunch in SanFran, but luckily there was one in Cannery Row, so they did get the chance to see it.
Fisherman’s Wharf in Monterey has a ton of restaurants who all claim to have the BEST clam chowder, and they give out free samples to try to prove it.

After lunch, we drove a little farther to get into Point Lobos park. Mark and I had never been to Point Lobos before and unfortunately, these pictures do not do it justice. I think Brasil is the only place I have been that could equal it in beauty. If you’ve ever wondered if there is a God who loves us, just go to Point Lobos and you will know the answer is YES. That’s how breathtaking this place is! With some of the problems I’ve been having with my heart I really don’t have the energy to take long hikes anymore. Mark found a short trial that wound up a cliff and watched Menininho from the top while Scott, Kevin, and I climbed down. We were right at the water and saw sea lions, a starfish bigger than my face, and lots of crabs and kelp. When I was worn out, all 4 boys went on an hour and a half hike on a different trail while I rested in the car.


Sometimes I can’t even believe I live somewhere that looks like this.

July 25, 2009
by marfmom
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Scott and Kevin Visit Part 1

We were so excited to have Mark’s brothers Scott and Kevin visit last week! I couldn’t ask for two better brothers-in-law…they even get along well with my brother! Menininho is really lucky to have such 3 fun uncles.

Those of you who know Mark know that he can be an even more meticulous planer than me. He created an itinerary for his brothers’ trip weeks in advance! Thursday afternoon we took the boys on Mark’s driving tour of Silicon Valley, which ends at In N Out burger. Menininho spent a lot of time giving his uncles looks like this:


and this:

Now, for all our meticulous planning, we really missed the boat on Saturday. Somehow, I forgot that Sunday was the AIDS walk in San Francisco. Given that this AIDS walk is the biggest (I think) in the country, of course traffic and parking were a bear on Saturday. We were able to take the boys to the Presidio but had to skip the rest of our plans in the city. We ended up at Fenton’s Creamery in Oakland for a very late lunch. Don’t bother eating a meal there because the food is just OK, the portions are small, and the prices are high, but DO stop for ice cream. Their ice cream is SO good!!!


You know you want one.