Here is a collection of personal stories submitted by readers. If you would like to share your story (Marfan or any related disorder), just email it to marfmom@gmail.com. I’d prefer if you included a picture, but it’s not mandatory. Submissions may be edited for grammar and clarity.

Ben
Debbie & Lee
Erin
Gaddie Family
Jennifer, Aaron, & Joshua
Jess & Brody
Josh
Kaitlyn
Keneisha & Chaiyoni
Nicole & Hanna
Rachel, Tony, & Sam
Rachel (LDS)
Rhiannen (EDS)
Stephanie & Logan
Tara-Lee & Alexa
Team Shaw
Vittoria