Musings of a Marfan Mom

Meet the Family

Hi! Thanks for coming by my blog! You can find out more about us below.

Maya: I’m a 30-something year old outspoken Latina mother of four, and I have Marfan syndrome. I have a Masters in Public Health, with my interests being patient advocacy and maternal and child health, and I’m working on a 2nd masters, in genetic counseling. When I’m not doing homework, corralling my kids, or volunteering with the Marfan Foundation, I love reading and trying out new restaurants.A 30something year old Latina woman with a dark wavy bob, red glasses, red lipstick, and a black blouse smiles at the camera. Greenery and a small pond are behind her.
Mark: My husband is my rock. He supports me in everything I try. We met in college, where we were both in the marching and pep bands. Mark is an electrical engineer with passions for music, nature, and gaming.
A white man in his 30s smiles at the camera. He has close cropped light brown hair and is wearing a baby blue polo shirt.
The Menininho: This isn’t my son’s real name; Menininho means “little boy” in Portuguese. He’s not so little anymore, but I’ve been blogging since he was a toddler. He loves engineering, especially bathroom design, running cross country and track, and percussion.

A young, white teenage boy smirks at the camera. He's standing in front of a door, wearing a dark blue athletic shirt and has close cropped brown hair that's shaved on the sides.
J: J (formerly Baby J) is now a middle schooler.  He’s a complete social butterfly and loves video games, sneaking candy, and reading (especially graphic novels!). J also has Marfan syndrome.

A young white boy with medium brown hair that is close cropped on the sides and long on top looks at the camera, not quite smiling. He's in a red t-shirt.

Miss R: Miss R was born knowing what she wants, and that has never changed. She enjoys playing sports, reading, and art. She might seem shy at first, but once you get to know her, she’s got a big personality!

A light skined Black girl wearing a pink t-shirt and pink jacket smiles at the camera. Her curly black hair is pulled back in a low ponytail.

Bean: Bean completes our circus! She’s pint-sized and perpetually happy. Her favorite activities include school, bowling, and anything having to do with the show Bluey.

A small white girl shows off her new blond bob by posing to the side, with one hand on her hip and the other pointing at her face. She wears a blie and purple striped tank top.

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