Musings of a Marfan Mom

Conference Recap in Photos


Meeting up with some of my fabulous women I talk with daily about everything from the ins and outs of raising a child with Marfan syndrome to which fast food is the tastiest.
Marfan Moms
Marfan Moms

Waiting in line for elevators, busses, etc.
waiting in line

Getting to hang out with the Marfan community’s best and brightest: the teens!
teens with Marfan
Marfan teens dancing
Marfan teens

Be Sociable, Share!

Related Post


  1. Okay, seriously, I realllly need to plan ahead and get us to the conference next year. Definitely in 2014 but every year I say “next year”.

    Looks like a great time!!!


  2. It was my first, but certainly not my last. What a great time and I was so happy to finally meet you! You do so much the Marfan community, it was truly an honor. Next year is going to be epic! LA baby!


Leave a Reply

Required fields are marked *.