Musings of a Marfan Mom

Celebration of Life Stories

Here is a collection of stories of those who have passed away due to Marfan syndrome or a related disorder, submitted by readers. If you would like to submit a story honoring your loved one, just email it to I’d prefer if you included a picture, but it’s not mandatory. Submissions may be edited for grammar and clarity.

Jon & Jonnie’s GoodGuys’

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