A good friend and college roommate of mine always said a 24 hour pity party from time to time can be really healthy, but never longer than that. So, it’s time to look at the other side of yesterday’s hypothetical … Continue reading →

Usually I’m pretty rah-rah-rah about Marfan. I love the Marfamily, I think Marfan has brought some positives to my life, you know the drill. But these past couple of weeks, a few hard things have happened within our community. I … Continue reading →