A little visual recap of this year’s conference 🙂
August 14, 2013
by marfmom
0 comments
Tag Archives: The Marfan Foundation
August 12, 2013
by marfmom
5 Comments
Josh’s Conference Speech
For those of you who haven’t attended a Marfan Foundation conference before, at the closing luncheon there is always the “Living Successfully Panel,” a group of 3-4 people who talk about their experiences with Marfan or a related disorder. There’s … Continue reading
August 6, 2013
by marfmom
1 Comment
The National Marfan Foundation Becomes The Marfan Foundation
As most of you in the Marfan syndrome and related disorders community probably know by now, during our annual conference last weekend our foundation (formerly the National Marfan Foundation) unveiled our new brand, complete with a new name (The Marfan … Continue reading