March 25, 2015
by marfmom
1 Comment
If you’ve somehow missed it, registration for the 31st annual Marfan Foundation Family Conference is live! I’ve come across a variety of questions online and I thought I’d take a stab at answering some of them for you, since I’ve … Continue reading
August 6, 2014
by marfmom
4 Comments
Back in 2010, I wrote My Beef With the Michael Phelps Marfan Obsession, a piece that remains one of the most read on my blog. I objected (and still do) to the idea of Phelps (who does NOT have Marfan) … Continue reading
April 15, 2014
by marfmom
4 Comments
One of the nice things about serving on the board of directors is that I’m able to attend the annual Heartworks gala in Manhattan. It’s the night before our board retreat (read: two days of long meetings) and is our … Continue reading