A little visual recap of this year’s conference 🙂
August 14, 2013
by marfmom
0 comments
Tag Archives: the Marfamily
June 21, 2012
by marfmom
15 Comments
The Miracle of the MarFamily
The perhaps peculiar – but beautiful – part of being a part of the Marfan syndrome community is the intense bond that is developed among affected families. I’ve never seen else anything like it. Every time a newly diagnosed, scared … Continue reading
March 28, 2012
by marfmom
6 Comments
So Your Child Just Got Diagnosed With Marfan Syndrome
Curiosity about Michael Phelps aside, it appears most people find this blog when their child is diagnosed with Marfan (as opposed to coming across it for later stage Marfan information, autism information, etc). I figured I’d take a moment to … Continue reading