January 11, 2010
by marfmom
0 comments
There’s seemingly a dearth of information about pregnancy and delivery in Marfan patients and it’s a subject I get a lot of questions on. I was really lucky to happen to live in a city with an OB who specialized … Continue reading
January 10, 2010
by marfmom
4 Comments
I wanted to let you know that McKenzie has got her plane and medical equipment! She and her parents are headed to Hopkins on Tuesday and she will have surgery about a week later. THANK YOU to everyone who has … Continue reading
January 8, 2010
by marfmom
5 Comments
McKenzie is a 2 year old beautiful little girl with a very severe form of Marfan syndrome. I first met her mother, Jennifer, a few months ago via NMF Connect, a social networking site for people with Marfan syndrome & … Continue reading