October 19, 2010
by marfmom
5 Comments
A large part of the reason I started this blog was to provide women with Marfan and related disorders a place to get a realistic story of pregnancy/motherhood and to allow us to connect with each other. As I get … Continue reading
September 6, 2010
by marfmom
2 Comments
Since I was a teenager, I’ve devoted a large part of my life to raising awareness of Marfan syndrome and related disorders, to encouraging patient advocacy. When I find opportunities to do either of these things, I jump on it. … Continue reading