February 3, 2010
by marfmom
17 Comments
It took 3 years, but I finally convinced my orthopedist to order me a custom back brace. I have a rare type of scoliosis, very flexible with a teenage onset and that continues to progress even as an adult. My … Continue reading
December 21, 2009
by marfmom
9 Comments
I’ve been thinking a lot about doctors these past few weeks. I’ve had problems with a couple of them recently, particularly my pain doctor. Her nurse doesn’t return calls for days, is sarcastic, and the doctor herself is unavailable and … Continue reading
December 9, 2009
by marfmom
17 Comments
This is a post that is not a particularly cheery one, so be forewarned. Part of the purpose of this blog is to document the ins and outs of Marfan, and I feel that needs complete honesty. I’ve spent the … Continue reading