April 19, 2012
by marfmom
292 Comments
Regular readers know that the National Marfan Foundation (NMF) is a cause very close to my heart. I’ve learned about the opportunity to help them win $250 and I’m hoping you will take a moment out of your day to … Continue reading
July 28, 2011
by marfmom
7 Comments
It’s way past time for my conference recap! This was a bittersweet conference: many of my good friends and “regular” teens were missing, but I was able to meet a few friends in person whom I’ve been corresponding with online … Continue reading
July 27, 2011
by marfmom
0 comments