April 2, 2009
by marfmom
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I think I’ve figured out why my blood pressure is still not totally back to normal. I’ve decided at this point it has little to do with my recovering from childbirth and everything to do with driving in California. Today … Continue reading
March 21, 2009
by marfmom
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The past few days have been pretty rough; I’ve had 3 people I was close to pass away suddenly, 2 of who had Marfan. Having a chronic, potentially life-threatening genetic disorder taught me the harsh realities of death early on … Continue reading
February 14, 2009
by marfmom
7 Comments
Warning: This is going to be a rather lengthy post, because I want to record all the details. It’s a balance how much information to give, but I want other future “Marf Moms” to have an idea of what they … Continue reading