I’m not quite sure where my story starts, but I suppose the Coolest Thing to Ever Happen to an 8 Year Old is as good a place as any. Ever since my parents first used me to get them free … Continue reading
June 24, 2009
by marfmom
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Tag Archives: marfan syndrome
June 23, 2009
by marfmom
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Good News
I got wonderful news today! The National Marfan Foundation called me this afternoon and asked me to speak in front of EVERYONE (300-500 people) at conference! The last event at conference is the 4 person “Living Successfully” panel, comprised of … Continue reading
June 2, 2009
by marfmom
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Memorial Day
We got invited to a Memorial Day BBQ. I was really thankful for the invite, as we don’t know many people yet. It was a potluck, so I brought some lemon cupcakes with chocolate frosting. But, with the strawberry shortcakes … Continue reading