November 9, 2009
by marfmom
10 Comments
In July 2007, Tony-award winning choreographer Ann Reinking came to the National Marfan Foundation conference at Stanford to start filming a documentary on Marfan syndrome. Her son has the disorder and, as a choreographer, Ann recognized the beauty of the … Continue reading
November 5, 2009
by marfmom
10 Comments
There are two irrefutable rules of high school: 1) Most teens want to be like all other teens (although they won’t outright admit to this) and 2) Athletes are the least likely group on the adolescent food chain to get … Continue reading
October 27, 2009
by marfmom
1 Comment
I dreaded Menininho’s 9-month checkup yesterday. I was sure I’d get bad news. You see, I love baby wearing. I carried Menininho in a sling for months, and then transitioned to using our Ergo. Lately it’s been more and more … Continue reading