January 12, 2010
by marfmom
4 Comments
McKenzie’s family hasn’t posted anything on her Facebook page, but I just read this article in the Tallahassee Democrat, which says McKenzie’s trip to Johns Hopkins for surgery has been put on hold indefinitely. She was supposed to fly out … Continue reading
January 11, 2010
by marfmom
0 comments
There’s seemingly a dearth of information about pregnancy and delivery in Marfan patients and it’s a subject I get a lot of questions on. I was really lucky to happen to live in a city with an OB who specialized … Continue reading
January 10, 2010
by marfmom
4 Comments
I wanted to let you know that McKenzie has got her plane and medical equipment! She and her parents are headed to Hopkins on Tuesday and she will have surgery about a week later. THANK YOU to everyone who has … Continue reading