February 22, 2011
by marfmom
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Time for an update on Baby J’s big Marfan appointments. I finally got a copy of his complete echocardiogram report in the mail. You can imagine how I felt to learn that he has a patent foramen ovale, which is … Continue reading
February 10, 2011
by marfmom
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Yesterday I took the boys for their well-visit checkups: the Menininho for his 2nd birthday visit and Baby J for his 2 month exam. I had a long list of things to discuss, especially for M since he only goes … Continue reading
February 8, 2011
by marfmom
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The National Marfan Foundation has yet another resource for parents! They have just made available a short children’s book called Marfan Does Not Mean Martian. It was written by a middle school student named Elias Clark Turner for a biology … Continue reading