May 24, 2011
by marfmom
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Today {May 22} is my thirty-first birthday. I am the eldest of four – and the spontaneous mutation of the lot. I like to say ” I was the only one who was planned- and this is what they got!” … Continue reading
May 23, 2011
by marfmom
4 Comments
“The lens in your daughter’s eye is dislocated.” And with these words, our journey to a Marfan syndrome diagnosis began. Our beautiful daughter Alexa was born in April of 2003. She was perfect. She was our first baby and we … Continue reading
May 22, 2011
by marfmom
5 Comments
I met Jess online, as Brody is not much older than Baby J. She shares her story of Brody’s diagnosis below. Brody was born on aug 13, 2010 after a stressful 24 hour delivery. Upon birth, the doctors noticed his … Continue reading