November 7, 2011
by marfmom
14 Comments
Usually I’m pretty rah-rah-rah about Marfan. I love the Marfamily, I think Marfan has brought some positives to my life, you know the drill. But these past couple of weeks, a few hard things have happened within our community. I … Continue reading
September 16, 2011
by marfmom
2 Comments
I’m excited to announce that I’m going to be a contributing writer on the new National Health Council blog on WebMD, A Different Normal! My first post, Rising Above Restrictions, is up now. Thank you to the National Marfan Foundation … Continue reading
September 15, 2011
by marfmom
5 Comments
Tuesday Baby J had a fluoroscopy. Because he sometimes chokes/coughs when he nurses (about once a day now, but previously at every nursing session), his pulmonologist wanted to rule out aspiration. We also needed to check to make sure his … Continue reading