August 13, 2012
by marfmom
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This year’s conference was amazing! It’s hard to sum up the emotions that go along with it, though Heather of The Giraffe Family did a good job of it! I was particularly excited about the 2012 conference for a couple … Continue reading
August 8, 2012
by marfmom
2 Comments
Meeting up with some of my fabulous women I talk with daily about everything from the ins and outs of raising a child with Marfan syndrome to which fast food is the tastiest. Waiting in line for elevators, busses, etc. … Continue reading
August 6, 2012
by marfmom
6 Comments
While I’m away at the National Marfan Foundation conference and vacation with my family, I will have a few guest posters from the Marfan community. Today’s post is by Allie, a pre-teen. I think it’s a helpful read for any … Continue reading