April 11, 2013
by marfmom
1 Comment
Brittany is one of the fantastic teens that I’ve come to know. She’s a sweetheart, and I’m excited for her to guest post today! My name is Brittany. I have Marfan syndrome. I haven’t known about having it but 5 … Continue reading
April 9, 2013
by marfmom
12 Comments
I’m going to discuss something that I get rather passionate about, and I hope that you’ll both hear me out and be willing to engage in a friendly conversation about this if you do disagree. Some of you may have … Continue reading
February 25, 2013
by marfmom
6 Comments
In honor of Marfan awareness month, Debbie is sharing the story of her son Lee’s diagnosis. Debbie and I met a few years ago on NMF Connect. I was excited when I was able to meet the two of them … Continue reading