September 10, 2013
by marfmom
1 Comment
I’m out of town on an unexpected trip. While I’m gone, my friend Julie is kind enough to share with us her birth story. It will be presented in 3 parts. Thanks, Julie! 🙂 The Story of Max By the … Continue reading
September 9, 2013
by marfmom
5 Comments
I’m out of town on an unexpected trip. While I’m gone, my friend Julie is kind enough to share with us her birth story. It will be presented in 3 parts. Thanks, Julie! 🙂 The Story of Max My niece … Continue reading
August 26, 2013
by marfmom
4 Comments
Twenty years ago this month, I was diagnosed with Marfan syndrome. I was 8 years old and I am amazed at everything that has changed since then. When I was diagnosed: – We were still being told the average life … Continue reading