August 11, 2017
by marfmom
2 Comments
Hello, Blog! It’s been awhile! Here’s a quick recap of what’s happened in the past 6 months: – I had a hysterectomy. – We adopted a baby girl, Baby E/Bean, and she has the most delicious cheeks you’ve ever seen. … Continue reading
March 25, 2015
by marfmom
1 Comment
If you’ve somehow missed it, registration for the 31st annual Marfan Foundation Family Conference is live! I’ve come across a variety of questions online and I thought I’d take a stab at answering some of them for you, since I’ve … Continue reading