February 21, 2013
by marfmom
3 Comments
I’m proud to call Rachel a friend, and excited that she is willing to share her story here today. Rachel is very active in the online advocacy community and one of my go-to friends for questions about Loeys-Dietz syndrome. She’s … Continue reading
February 17, 2013
by marfmom
1 Comment
Today my friend Paula asked me to guest post at her blog today for Marfan Awareness Month. I’m writing about what teachers (and others who are around kids regularly) should look for that might indicate Marfan. Please check it out! … Continue reading