December 13, 2012
by marfmom
2 Comments
It’s that time of year again! Last year’s Marfan & Related Disorder Gift/Resources Guide was such a hit that I wanted to do it again. Here you’ll find products that parents of kids of all ages love. Response with ideas … Continue reading
November 29, 2012
by marfmom
11 Comments
Well, let me tell you what. It’s almost midnight and I’ve had like 7 hours of sleep over the past two days combined and right now I’m a little punchy. But, I wanted to update about our trip. J-Man and … Continue reading
March 1, 2010
by marfmom
10 Comments
Many of us have felt the anxiety of trying to find a new doctor, and the frustration of having to “train” a doctor if a Marfan specialist can’t be found. Today’s post is going to be focused on the types … Continue reading