November 23, 2009
by marfmom
4 Comments
I wasn’t sure how I would like In My Hands. The segments I posted earlier looked promising, but I’d seen the rough cut of the documentary at the Boston NMF conference and hated it. I felt like the movie had … Continue reading
November 10, 2009
by marfmom
0 comments
I thought the Rosie show with Ann and Jonathan went so well today! Below is another clip from the documentary. Enjoy! [youtube=http://www.youtube.com/watch?v=8HwqB5XqWAA]
November 9, 2009
by marfmom
10 Comments
In July 2007, Tony-award winning choreographer Ann Reinking came to the National Marfan Foundation conference at Stanford to start filming a documentary on Marfan syndrome. Her son has the disorder and, as a choreographer, Ann recognized the beauty of the … Continue reading