May 14, 2013
by marfmom
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Like to run? Don’t like to run, but could be compelled to run? Or perhaps you like to walk or ride? Well then, this post is for you! The National Marfan Foundation has a new endurance program to raise money … Continue reading
February 4, 2013
by marfmom
1 Comment
February is Have a Heart Month, also known as Marfan Awareness Month. To celebrate, I’m asking readers to submit their diagnosis, birth/adoption/surrogacy, or celebration of life stories. Andi, president and co-founder of Jonnie’s GoodGuys, Inc. is sharing the story of … Continue reading