January 10, 2010
by marfmom
4 Comments
I wanted to let you know that McKenzie has got her plane and medical equipment! She and her parents are headed to Hopkins on Tuesday and she will have surgery about a week later. THANK YOU to everyone who has … Continue reading
January 8, 2010
by marfmom
5 Comments
McKenzie is a 2 year old beautiful little girl with a very severe form of Marfan syndrome. I first met her mother, Jennifer, a few months ago via NMF Connect, a social networking site for people with Marfan syndrome & … Continue reading
December 29, 2009
by marfmom
6 Comments
It’s been a busy year in our household! Here are a few of the highlights: January: I had just graduated from graduate school and was enjoying doing nothing but being pregnant. About halfway through the month I learned my delivery … Continue reading