October 9, 2013
by marfmom
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For the past two years, we’ve had to thicken almost all of J’s drinks due to his dysphagia. No explanation for it other than “Marfan syndrome floppy tissue” could be determined, but Marfan syndrome was enough of an explanation for … Continue reading
September 15, 2011
by marfmom
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Tuesday Baby J had a fluoroscopy. Because he sometimes chokes/coughs when he nurses (about once a day now, but previously at every nursing session), his pulmonologist wanted to rule out aspiration. We also needed to check to make sure his … Continue reading