January 8, 2010
by marfmom
5 Comments
McKenzie is a 2 year old beautiful little girl with a very severe form of Marfan syndrome. I first met her mother, Jennifer, a few months ago via NMF Connect, a social networking site for people with Marfan syndrome & … Continue reading
January 5, 2010
by marfmom
6 Comments
Today’s post comes from a question from Tom: How did you ensure you didn’t pass Marfan on to your child? Any good links/resources on that process? This is a great question! First, I’ll briefly explain how Marfan works. Marfan is … Continue reading
January 4, 2010
by marfmom
6 Comments
There’s seemingly a dearth of information about pregnancy and delivery in Marfan patients and it’s a subject I get a lot of questions on. I was really lucky to happen to live in a city with an OB who specialized … Continue reading