August 3, 2010
by marfmom
1 Comment
A few weeks ago the top Marfan researchers released an updated set of diagnostic criteria. I’ve been planning a post about it for awhile, but I wanted to take the time to make sure I fully understood it myself before … Continue reading
March 1, 2010
by marfmom
10 Comments
Many of us have felt the anxiety of trying to find a new doctor, and the frustration of having to “train” a doctor if a Marfan specialist can’t be found. Today’s post is going to be focused on the types … Continue reading
January 18, 2010
by marfmom
13 Comments
Today starts a three-part series: Marfan Through the Eyes of the “Unaffected.” You’ve read my story, but what about how Marfan has affected those around me? Over New Years Mark, the baby, and I met one of my college girlfriends … Continue reading