February 25, 2013
by marfmom
6 Comments
In honor of Marfan awareness month, Debbie is sharing the story of her son Lee’s diagnosis. Debbie and I met a few years ago on NMF Connect. I was excited when I was able to meet the two of them … Continue reading
August 23, 2012
by marfmom
9 Comments
Today I am honored to feature my friend Valeria. I found her blog via Google Alerts a couple of years ago, a few months after her daughter, Vittoria, passed away from complications due to Marfan syndrome. Vittoria’s story continues to … Continue reading