July 8, 2010
by marfmom
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If you’re seeing this post, it’s because the hotel Internet ended up being too outrageous for me to spend money on, considering I’m only in the room 12:30 am to 7:30 am. (Is it just me, or does it seem … Continue reading
May 13, 2010
by marfmom
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This post is especially for my European readers. I know it’s a little late in the game, and I apologize for that! Tomorrow, May 14th, the Asociacion Sindrome De Marfan (SIMA) is hosting the first International Congress on Marfan Syndrome. … Continue reading
April 5, 2010
by marfmom
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Those affected by Marfan or a related disorder should know that it’s THAT time of year again: conference registration!!! Since the deadline to apply for scholarship is Mon. April 12th, I thought I’d take a moment to talk about why … Continue reading