May 1, 2012
by marfmom
0 comments
Today is the last day you can apply for a scholarship for this August’s National Marfan Foundation conference! These scholarships are only available to people in the United States and preference is given to those who have never attended a … Continue reading
February 12, 2012
by marfmom
14 Comments
Today, I want to ask all of you for some help. Last spring, my friend Sarah guest posted her son Danny’s diagnosis story. Danny is a few months older than Baby J and is severely affected by Marfan syndrome. In … Continue reading
December 31, 2011
by marfmom
6 Comments
As we prepare to say goodbye to another year, here’s a look back at some of the major events/favorite posts of 2011. January: January was a packed month. M had his 2nd IFSP meeting and Baby J had his first … Continue reading