August 8, 2012
by marfmom
2 Comments
Meeting up with some of my fabulous women I talk with daily about everything from the ins and outs of raising a child with Marfan syndrome to which fast food is the tastiest. Waiting in line for elevators, busses, etc. … Continue reading
July 31, 2012
by marfmom
0 comments
I’m headed the National Marfan Foundation conference! I won’t have Internet while I’m away, but I’ve pre-scheduled some guest posts while I’m gone. If you’ll be at the conference, please come say hello to me!
May 29, 2012
by marfmom
3 Comments
Every year I make a slideshow of the teen conference program (which I run with my friend Ben). Sadly, it’s taken me 10 months to finish this one up, but here it is! I love getting to work with the … Continue reading