Musings of a Marfan Mom

June 23, 2009
by marfmom
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Good News

I got wonderful news today! The National Marfan Foundation called me this afternoon and asked me to speak in front of EVERYONE (300-500 people) at conference! The last event at conference is the 4 person “Living Successfully” panel, comprised of … Continue reading →

July 27, 2008
by marfmom
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Pictures!

First up, a belly shot. Beginnings of a baby belly, or just an ate-too-much-at-dinner belly? You decide. And yah, if you were wondering, the picture was taken in our bathroom. It’s the only room with a solid, non-white backdrop. Many … Continue reading →