October 12, 2011
by marfmom
1 Comment
Tag Archives: child with marfan
September 15, 2011
by marfmom
5 Comments
J’s Fluoroscopy, & What Moms Should Know About Aspiration
Tuesday Baby J had a fluoroscopy. Because he sometimes chokes/coughs when he nurses (about once a day now, but previously at every nursing session), his pulmonologist wanted to rule out aspiration. We also needed to check to make sure his … Continue reading
August 29, 2011
by marfmom
10 Comments
Recognizing the Beauty
A few months ago, I posted some photos on Facebook of Baby J that emphasized his long extremities: hallmarks of Marfan syndrome. One of my friends commented that it was interesting to see pictures of a baby with Marfan and … Continue reading