February 27, 2015
by marfmom
2 Comments
After our fall appointment out of state, I decided it’s time for J to have a local orthopedist. There’s no reason to see Big Name Doctor until J is closer to needing surgery. We can do regular x-rays here and … Continue reading
August 23, 2012
by marfmom
9 Comments
Today I am honored to feature my friend Valeria. I found her blog via Google Alerts a couple of years ago, a few months after her daughter, Vittoria, passed away from complications due to Marfan syndrome. Vittoria’s story continues to … Continue reading
March 28, 2012
by marfmom
6 Comments
Curiosity about Michael Phelps aside, it appears most people find this blog when their child is diagnosed with Marfan (as opposed to coming across it for later stage Marfan information, autism information, etc). I figured I’d take a moment to … Continue reading