October 30, 2009
by marfmom
8 Comments
I want to know what is wrong with people. Are we so connected online that we’ve stopped connecting in person? Is our “Me” culture so pervasive that we simply don’t care about each other anymore? Today, my son learned to … Continue reading
October 29, 2009
by marfmom
12 Comments
I’m pretty sure I came straight from the womb as a Tree-Hugging, Bleeding-Heart Liberal. You doubt me? Each September, my mother asked my siblings and me what Halloween costume we wanted her to make for us. As a 7 or … Continue reading
July 13, 2009
by marfmom
1 Comment
Other installments in this series are Part 1, Part 2, and Part 4 I had decided that my mission was to make sure 1) everyone knew about Marfan and 2) people with Marfan knew how to advocate for themselves, especially … Continue reading