September 6, 2010
by marfmom
2 Comments
Since I was a teenager, I’ve devoted a large part of my life to raising awareness of Marfan syndrome and related disorders, to encouraging patient advocacy. When I find opportunities to do either of these things, I jump on it. … Continue reading
May 3, 2010
by marfmom
3 Comments
The symposium this weekend was terrific! I love any excuse to get together with my Marfamily, you all know that, but the information was also fantastic and I learned a lot of new things. Dr. Liang, head of Stanford’s Clinic … Continue reading
April 9, 2010
by marfmom
10 Comments
Today, I’m just featuring one blogger: Gina, AKA The Feminist Breeder. Yes, I’ve featured one of her posts before, but man, this one was EXCELLENT. See, this week a huge study came out about the benefits of breastfeeding. The researchers … Continue reading