Musings of a Marfan Mom

January 7, 2009
by marfmom
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Grateful

I feel so grateful right now that I wanted to record my feelings so whenever I’m feeling down I can come back and read this. Tonight I was on the computer when one of “my” teens contacted me to talk about life. Over the course of the conversation she asked how I knew Mark was The One. As I told her the story I was reminded again of how grateful I am to have found am eternal partner who is willing to support me unconditionally. I also feel blessed to be able to do the work I do with the NMF. Honestly, I can’t think of a more fulfilling job than what I do with the teens. They are so much fun and teach me more than they probably know. I’m lucky to have such great friends here in Columbus and beyond who are checking in with me to make sure I’m OK in these last few weeks of pregnancy. Finally, I am still in awe that in a few weeks I am going to be a mother. I will always be grateful that I’ve been given the experience of being pregnant, for better or for worse, because I know that is not a given for many women like me. The past 6 months have not been easy with Mark gone and me finishing my MPH, but I don’t think I would have it any other way. Both Mark and I have gotten to have some neat experiences during this time, I’ve gained a deeper appreciation for many things, and I know the small trials we’ve been through will make life that much sweeter when our expanded family is together at last in California. 🙂

January 6, 2009
by marfmom
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LittleOnes

I just want to put in a quick plug for my friend Abbey. She and I met while counselors at the church summer camp for teens: EFY (Especially for Youth).

Anyway, she just started her own business, LittleOnes. She has created a line of items for baby, inspired by her own daughter, Ella. Abbey makes super cute pacifier clips, hairbows, hats, and blankets. I imagine starting your own company is difficult, so I just want to wish Abbey all the best! 🙂

January 2, 2009
by marfmom
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Reunion!

I have been blessed to have an experience that I know many are not able to claim: I have kept the same friends since I was very little. Growing up there was a group of us at church that did everything together: Erin, Stephanie, Diane, Ellen, and me. Erin and I, as I’ve mentioned before, have been friends since before I could walk. In 8th grade or so, Caitlyn joined our group. Years later we’re still friends, even though we live all over the country and have spouses and babies/babies on the way.

This Christmas, the stars aligned and all of us but Ellen were in town on one day. Before that, it hadn’t happened for over 2 years, when all of us came to town for Caitlyn’s wedding. So, the 27th Erin, Stephanie, Diane, and I (plus our friend Elyse, who is preggo too), along with the husbands and baby Chaela, got together to catch up.

Elyse and I are due one day apart!

Steph, Elyse, Me, Erin, Caitlyn, and Diane

And, a flashback to the past: