Musings of a Marfan Mom

February 21, 2014
by marfmom
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Friday Favorites

It’s Friday, which means it’s Friday Favorites time! Come on over and link up a favorite post that you wrote this week! Amy and/or I will come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too.


Friday Favorites with Musings of a Marfan Mom & Anktangle

February 20, 2014
by marfmom
0 comments

Cross the Finish Line for Caroline

loeys-dietz syndrome

My fried Jennie asked me to help spread the word about her upcoming fundraiser, Cross the Finish Line for Caroline. Jennie’s daughter, Caroline, has Loeys-Dietz syndrome (a sort of genetic “cousin” to Marfan syndrome).

In its 3rd year, this is a 5K race and “fun run” to increase awareness of Loeys-Dietz syndrome and to raise funds for the Loeys-Dietz Syndrome Foundation. It will be held March 1st, 2014 in Bossier City, Louisiana. This really is a day of family fun! After the race are awards, lunch, and a concert!

To register, go here.

February 14, 2014
by marfmom
1 Comment

Friday Favorites

Happy Valentine’s Day!

It’s Friday, which means it’s Friday Favorites time! Come on over and link up a favorite post that you wrote this week! Amy and/or I will come over and comment on each of your posts. I hope that you’ll spread the love and visit the blog or two above yours too.


Friday Favorites with Musings of a Marfan Mom & Anktangle