Musings of a Marfan Mom

March 10, 2010
by marfmom
9 Comments

The Situation’s Adventures

What has The Situation been up to lately?

He came with Mark, Mark’s brothers, and me to see Valentine’s Day. While the other 3 guys drooled over Taylor Swift (really? Yes.), The Situation preferred Anne Hathaway. He’s got better taste, if you ask me.

We also made a trip to the beach, where The Situation took in the surf, seagulls, and seaweed from a safe perch.

March 9, 2010
by marfmom
2 Comments

Friends of Kenya

My little sister, Gabriella, is 17. At a time when most girls are concerned about who is dating whom and what to wear to prom, Gabri is working to bring awareness to the poverty in Kenya, particularly the Kibera slum. She became interested in African issues last year after doing some reading on the Lost Boys of Sudan and the Rwandan Holocaust and decided to research what non-profits are working in the area. During that process, she came across the American Friends of Kenya (AFK) and liked what she saw. They recently sent out a list of items they need, and Gabri realized she could help.

That’s where the Friends of Kenya website comes in. Gabriella designed this website to help facilitate donations, both monetary and items. In contains information about AFK, including pictures and video, facts about Kenya, and how and where to drop off items in person if you live near Madison, WI.

Please take a minute to check out her site; see if there is something you can donate. I know they are in particular need of knit hats, as everyone must shave their heads due to lice, but the nights are very cold. If you don’t want to pay for shipping, there is a link to donate money and you can specify what you’d like the money to buy. If you have any questions, you can contact her at gwbrown3@wisc.edu.

Thank you for your consideration! Every little bit helps.

March 8, 2010
by marfmom
8 Comments

Screening a New Pediatrician

How to screen a pediatrician is a question that came up over Twitter recently. It’s a topic that I gave a LOT of thought while I was pregnant with Menininho, so I figured I’d blog about the process I went through and what questions I asked.

First: Yes, you DO need a pediatrician picked out before the baby is born. Don’t wait till the last minute to find someone because it might take a little while. Check to see whom your insurance covers, as your friends, look around online, then call a few offices to see about making prenatal interviews. I even called the National Marfan Foundation to see if they had any suggestions and they were able to put me in touch with someone in my area who could help me.

Here are questions you may want to consider asking potential pediatricians, in no particular order:

1) What are your thoughts on breastfeeding vs. formula feeding? What do you know about breastfeeding? You want to find a doctor who is aligned with your views. If you want to breastfeed and the pediatrician has free formula samples everywhere, that could be an indication of how supportive they will be. On the flip side, of you’re planning to formula feed and the pediatrician is dead set against formula, you might feel uncomfortable. As a general rule, I don’t depend on pediatricians for breastfeeding advice. Check out breastfeeding support groups in your area or find a certified lactation consultant instead.

2) What are your thoughts on feeding on demand vs. scheduled feedings? This can be a contentious point if you and your doctor don’t agree on philosophy.

3) When do you advocate starting solids? While many people start rice cereal as early as 4 months, the American Academy of Pediatrics recommends breastfeeding or formula feeding exclusively until 6 months of age.

4) What are your thoughts on vaccines? If you plan on doing anything than the traditional schedule, you’ll want a pediatrician who is on board. I knew we were mostly pro-vax, but probably didn’t want to do a traditional schedule. I was very grateful that our pediatrician was not only ok with this, but had done reading in the area and could guide us into the best schedule for Menininho based on our family’s specific health issues.

5) What are your thoughts on co-sleeping? Sleep training? Again, this can be a contentious point if you and your doctor don’t agree on philosophy.

6) What are your thoughts on circumcision? If you decide not to circumcise your son, you’ll want your pediatrician to be informed (i.e. – not retract the foreskin).

7) How familiar are you with both physical and behavioral milestones? How much of the well visits will be spent discussing these? We all want to make sure that our kids are on track, and it’s pretty easy to look up the physical milestones online or in a book, but I think the behavioral ones can be even more perplexing. A doctor who spends time at each well-visit letting you know what milestones to expect for the next visit is a doctor who will help you catch any problems early, when intervention is most effective.

8 ) Do you have separate well child and sick child waiting rooms? This could help prevent your healthy child picking up a virus while waiting for his turn to be seen.

9) How far in advance do you need to make a well-visit appointment? How long does it take to get in a sick visit? Will your child see her pediatrician for a sick visit, or another at the practice? Our pediatrician is very popular, so we get great well-visit appointments with her but rarely see her when Menininho is sick. The trade-off is that we always get same day appointments.

10) What happens when there is an after-hours emergency? Is there an answering service? Who is answering the phones and who gets paged? At our practice, a nurse practitioner answers the phone (we’ve experienced this first hand a couple of times), takes the information, dispatches some medical advice, and then pages our particular pediatrician.

What questions did you ask when screening pediatricians, or did you screen any?